We originally created this blog to keep family and friends updated about our little man Jacob, who was diagnosed in the summer of 2011 with a rare, life-limiting genetic disease called Niemann-Pick (type A/B). Jacob earned his angel wings on November 15, 2012, but remains our daily inspiration and constant reminder that we must live in the moment and fill each day with JOY, LAUGHTER and an abundance of LOVE.

Wednesday, October 30, 2013

REBELS With A Cause

This past Saturday was an incredibly special day for our family. One of our local youth football teams, the REBELS, dedicated the entire day of games in honor of Jacob and raising awareness for Niemann-Pick Disease. Every single player wore light blue socks, each cheerleader wore a big blue bow, and all the coaches sported specially-made Rebels t-shirts in light blue too. Our family sat in the stands cheering them all on as three of the four teams won their games! Whoop!! Whoop!!

PERSEVERE
Josh played for the Rebels back in the day and we have many families members and friends who were on the field Saturday either playing, cheering, or coaching. It was nothing short of AMAZING to watch Jake's older cousins playing their little hearts out for him. I cannot even describe how incredibly touched we were to sit in the stands and watch as all of these kiddos showed their support for our little man. There were goosebumps and tears at each of the half-time announcements, where the announcer read a short tribute about Jacob and why the teams were wearing blue -- a reminder to live each day in the moment and fill each day with JOY!   

Let the games commence...
Sideline warm-ups and sporting those blue socks
 
Cheer Bows!!! I think I need to make one for Kelly.
 
Josh had special shirts made just for us with a heart-shaped picture of Jake
Kelly (rocking a blue headband) with her Uncle Glenn
Raising awareness and money for research!
Jake's Uncle ("Coach") Casey and cousins Chase and Casey Jr.

Cousins cheering in the stands!
Just a few of Jakey's biggest fans!!
 
But wait...the day got even better when we found out that several hundred dollars had been raised through raffle ticket and PERSEVERE wrist band purchases. All money is being donated to the National Niemann-Pick Disease Foundation in Jacob's memory to support research for NPD type A treatments.

Casey Jr., Abigail and Christian -- Josh and I are so very proud of you! The love and support you have for your cousin is truly something special. We see it every time you wear one of Jakey's wristbands and hear it with every mention of his name. You put on brave faces and played/cheered your hearts out. We may be biased, but we have some pretty awesome kiddos in our family!

From the bottom of our hearts, THANK YOU so much to the entire Rebels organization for your incredible kindness and support in honoring our son. A special thank you to Casey and Michelle Strand for all your efforts to create such a memorable day!

And that's another WIN!!!
Alone we are rare, but together we are strong!

3 comments:

  1. This is so amazing Sarah . That last pict and the one of you as fam infront of Jacobs sign are so beautiful. Congratulations on an amazing successful event!!! Jacob is so loved. Xoxo s

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  2. Sarah! This is so totally awesome. I was smiling and crying all the way through! What a tremendous and beautiful tribute to your beautiful boy. I am so filled with joy at this, I just can't imagine how you and Josh must have felt. You must have been bursting at the seams! Thank you SO much for sharing this special day with us! Jakey is soooo loved! xoxoxo

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  3. this is so touching! I can only imagine how loved you felt and how happy Jacob was looking down. Your heart shirts made me smile so big! xoxo ,Chelsea

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