One of the awareness efforts that the Global Genes Project is currently running, is the 7,000 Bracelets for Hope campaign. The number 7,000 represents the 7,000 different rare diseases that impact approximately 30 million Americans, including our little angel Jacob. People from all over the United States donate beautiful handmade blue bracelets, which are then gifted to those affected by a rare disease. The blue color comes from the connection to blue jeans; sort of a play on words with "genes", since most rare diseases are caused by faulty genes. We submitted a request to receive bracelets and just happened to get our bracelets in the mail just in time to wear them at Jacob's Family & Friends fundraiser back in September. The bracelets are such a special and meaningful gift that connects us to a very important cause, while at the same time raising awareness. I wear my bracelet for hope along with my Joy of Jacob wristband and other bracelets that I've been gifted -- a simple way to show support for those afflicted with rare diseases and most importantly, to serve as a visual token of my love for my little angel Jakey.
I should also add that I connected with the designer (donor) of this bracelet via e-mail shortly after Jacob passed, just to thank her and let her know how much her small act of kindness meant to me. In return, I received the most thoughtful e-mail response from her...thanking ME?? She had spent over an hour and a half on Jacob's blog reading about our journey with Niemann-Pick. I later found out that she had made a donation in Jacob's memory to the Niemann-Pick Disease Foundation -- so incredible! The kindness and generosity we have experienced through everything with Jacob has taught us many things...
- Sometimes it's the little things, that mean the most
- No act of kindness (no matter how small), is ever wasted
- Never underestimate the kindness of strangers
|My beautiful bracelet for HOPE, complete with a little angel and reminder to keep the faith.|
The Global Genes Project promotes that "Unity creates HOPE," so I encourage you to visit their website, 'friend' them on Facebook, and if you're super crafty, perhaps you can even donate a special bracelet or two to those affected by rare diseases.
** Reminder: Don't forget to WEAR THAT YOU CARE this Thursday, February 28th. Rock those jeans and sport your Joy of Jacob wristbands to help raise awareness for Niemann-Pick Disease and other rare diseases. **