Despite a couple of seizures earlier in the day, Jacob was in great mood and joined in on the fun! We sat out on the patio listening to the live music and mingling with everyone who showed up, as well as thanking them for their support. I can't tell you how much it means to us to have this immense amount of love and support for our family. The financial support is something that we are beyond grateful for, but it's the well wishes, kind words of encouragement, and hugs that mean more to us than you will ever know! The fact that our little man is making his mark on the hearts of so many, truly makes our hearts happy.
The outdoor patio was packed! |
Our favorite parts of the day:
- Getting the call at lunch that lines were out the door!Yahoo!!
- Josh and Jaker's grandpas (Beaver, Dennis, and Paul) sang/played a special 'Heart of Gold' song for Jacob
- Grandpa Paul played Jake's favorite song 'Here Comes the Sun'
- Recieving e-mails from complete strangers who had heard about the fundraiser and visited Jake's blog...we're RAISING AWARENESS!!! We also had information about Niemann-Pick at the event.
Thank you to all of the talented local musicians who graced us with the amazing gifts of music: Paul Cotruvo, Tony Bryant, Larry Hall, Jim Caroompas, and Hope Savage. That patio was a ROCKIN'!
Larry, Toni and Paul playing out on the patio |
This little cutie even got up and sang a song - so sweet! |
Thank you! Thank you! Thank you...to all of you who dined-in, ordered take-out, and sent donations even if you couldn't make it.
Wow, Sarah! What an awesome turnout for such an awesome boy! Soooo happy that the fundraiser was so successful and just as happy to see that more and more people are becoming aware of NPD.
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