We originally created this blog to keep family and friends updated about our little man Jacob, who was diagnosed in the summer of 2011 with a rare, life-limiting genetic disease called Niemann-Pick (type A/B). Jacob earned his angel wings on November 15, 2012, but remains our daily inspiration and constant reminder that we must live in the moment and fill each day with JOY, LAUGHTER and an abundance of LOVE.

Sunday, September 30, 2012

Amazing Day!!!

If we were to pick one word to describe our Family & Friends Fundraiser yesterday, it would be...AMAZING!!! Close to 200 of our closest family members and friends came out to support our little man. It was a fun-filled day that included a balloon-making clown, face painting, live music by our talented family members, tons of food, and even some magic! Most of all, the day was filled with an abundance of love and support for our family!

Jake had a really rough day yesterday and wasn't feeling well, so he spent most of the day snuggled up in the arms of various family members. Despite not feeling well, Jake held out until the end of the event and even mustered up a smile for his Aunt Cathe, which made us very happy! Our little man is the poster-child for what it means to persevere!

A HUGE THANK YOU to each and every one of our loved ones who came out to support our little man Jacob. It is simply impossible to put into words how incredibly special this day was and how humbled we are with the outpouring of love for our little man. We raised a nice amount of money to support Jacob's ongoing medical expenses and helped raise awareness for Niemann-Pick Disease. In fact, even a few passersby walked by the event and dropped money into the donation box. A very special thanks to Jacob's grandparents Sheila and Paul Cotruvo, who helped organize the event and to all the rest of our AMAZING family and friends who helped with the AMAZING food, AMAZING entertainment, donated AMAZING raffle prizes, as well as helped out in various different ways to make it an AMAZING day!!

Here are a few pics that captured some of the joyous moments of the day:


Jake's banner

Everyone had fun clowning around. Check out all those crazy balloon hats!!

The face painting/temporary tattoo booth was busy ALL DAY!! Practically everyone left with some party of their body painted.

"Grill Master" Uncle Jeff  and Grandpa D helping out too

It was a dog friendly event too...at least six or more pups joined in on the fun, but this was (by far) the biggest!!

Best raffle ticket sellers ever! Jake's cousins got the words "Persevere", "Joy of" and "Jacob" painted on their faces. Melts my heart!!

Grandpa Paul and Toni singing. Even Grammie Kathy got on the mic

Grandpa Beav and Diana singing a few songs

Some friendly faces : )

A little magic...how'd he do that??

Even the littlest of kids enjoy magic!

Magic show..."I'm looking for a volunteer."

And of course...the Great J-Bini (a.k.a. Josh) had to do a little of his own magic

Surrounded with love from his parents, grandparents and a few cousins too

We love you all so very much!!!

4 comments:

  1. Love you so much Sarah ! This day will forever be etched in All of our Hearts ~ God Bless all of you ~ Ma & Dad xo

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  2. Wonderful weather, wonderful turnout, wonderful pictures!

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  3. This is so awesome, Sarah! Such a wonderful day for you and Jakers! It's great to see all that love!

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  4. yeah!!! i am so happy for you guys!!! Jacob so deserves all the love and support. what a sweet baby boy-sending you all my love. xoxo ,Chelsea

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