We originally created this blog to keep family and friends updated about our little man Jacob, who was diagnosed in the summer of 2011 with a rare, life-limiting genetic disease called Niemann-Pick (type A/B). Jacob earned his angel wings on November 15, 2012, but remains our daily inspiration and constant reminder that we must live in the moment and fill each day with JOY, LAUGHTER and an abundance of LOVE.

Tuesday, July 3, 2012

Big Boy Bed

Yay!! Jake's big boy bed got delivered yesterday! 
Stretching out and kicking around
As soon as we set him down to test out his comfy new bed he had several great big smiles. We decided to get Jake a trundle bed, so that Josh and I have the ability to sleep right next to him if needed. Currently, Jake wakes up at least once a night and at some point we always end up moving him into our bed. Jake loves to be snuggled and usually just wakes up so that he can be next to us. We love our snuggle time, but it's a pain in the middle of the night having to move him and the feeding pump. We felt the extra bed in his room would be a good alternative and will probably be helpful in the future as Jake's health needs change. For now, we're just wondering...where can we find some cute sheets for kids (nothing too crazy, but more fun than just plain green)??
Wondering why Momma is taking so many pictures...
Jake's crib is being passed down to his baby sister-to-be and has already been moved into the baby's room. Josh and I spent all weekend clearing out the extra room (a.k.a. Josh's "Man Cave") and re-organizing things in the office too. Jake was such a good boy all weekend and played quite a bit on his own while watching us scramble around. We even had a bit of fun hiding Jake under his stuffed animals -- doesn't he look thrilled?? Ha! Ha!

His face is priceless in this one!


  1. Hahahaha LOVE the stuffed animal pic <3

  2. Love that pic!!!!

    Nanci Glassman

  3. Haaa! Love that picture - that face! "Really, Mom? Again with the silly stuff?" Just priceless. And awesome, bed, Jake! Can't wait to see what kind of fun sheets Mom finds. :)

  4. he is soo handsome! i love his new bed-pottery barn kids has our favorite sheets-so, so soft and cute:)