We originally created this blog to keep family and friends updated about our little man Jacob, who was diagnosed in the summer of 2011 with a rare, life-limiting genetic disease called Niemann-Pick (type A/B). Jacob earned his angel wings on November 15, 2012, but remains our daily inspiration and constant reminder that we must live in the moment and fill each day with JOY, LAUGHTER and an abundance of LOVE.

Saturday, August 18, 2012

Walking on Sunshine

We're walking on sunshine (whoa)...and don't it feel good! Well, in our case it's more like strolling since Jake isn't able to walk, but he LOVES it!!


Josh works nights, so the evenings are always Momma and Jake time. For the past two months or so, we've been taking advantage of the warm, bright summer nights and taking an evening stroll up to the park near our house. Right after Jake was born (as in a few days after), I used to take him on walks nearly every single day until the weather got too cold and rainy.


One of our very first walks together

Since I work full-time, it's hard to squeeze in enough time to take Jake for a walk when there's only a short window of time to feed him dinner, play, bathe, read a story and get him set up on his feeding pump for the night. He was starting to be really restless at night and had difficulty falling asleep, so I thought I'd try to shake things up and add a little fresh air to his nighttime routine. It has worked pretty well and seems to both relax him, as well as offer just enough stimulation to tucker him out  -- sometimes the little neighbor kids even run up to say hello to "baby Jake" (they all call him that). The walks are also good for me since I don't really have much spare time to workout and with the baby on the way, I'm not able to run either...so walking suits us just fine! In fact, nearly every single night Jake lets out at least one big belly laugh during our walk, which let's me know that he really enjoys it! I'd walk for miles and miles just to make our little man laugh and smile : )


Don't let the tough guy look throw you...this is Jake's signature pose when we're walking - laid back and enjoying the ride

2 comments:

  1. What a great post and great pictures. :)

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  2. Don't you just love that Mommy and me time? So special! Thanks for the pictures, Sarah. Can't get enough of those beautiful eyes of his! :)

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