Trying to Catch Some Zzzzzz's

Two big updates:

1.) Jake got his stitches out!! His G-tube site is healing nicely too! Now that the stitches are removed we can clean the site a lot better and he can rock his colorful new button buddies! Special thanks to my friend Adryon for the great recommendation. I'll have to share a pic soon (once I remember to take one).

2.) Jake had his sleep study on Friday night at Lucille Packard Children's Hospital Sleep Clinic in Mountain View. It was actually more of a non-sleep study because Jake had trouble sleeping the entire night, which was quite understandable considering he was hooked up to 29 wires...yes, 29 wires!! He had sensors measuring all sort of things: heart rate, oxygen level, air exchange, eye movement, and lots more! Jake did amazingly well while they put on all the sensors on and didn't cry at all!

Starting to put on sensors -- this one reminded us of a caveman bone under his nose : )

All 29 sensors and wires!! He was video recorded all night to monitor breathing and any chance of tangled wires

Only one parent was allowed for the test, but Daddy was a trooper and slept in the car so that he could still accompany us for the test. Thank goodness he did!  It was an hour and a half drive to Mountain View, then we had to unload the car, set up Jake's feeding pump and get him situated for the study. The sleep study was over the next morning at 6:00 am (on the dot) and overall it was a pretty restless night for all of us. Needless to say, we spent some time over the weekend catching up on some much needed Zzzzz's.

We should have the results of the study in a couple weeks and will review the findings with his pulmonologist. We're hoping to get answers on why Jake wakes up so much during the night and determine whether or not he might need supplemental oxygen to help with his irregular breathing. At this point, we're fairly certain that Jake has sleep apnea.