Trek was one of the four children in the United States currently persevering against Niemann-Pick type A. Even though Jacob is technically considered type A/B because of his gene mutations, I include him in this count because of the way his disease is progressing with early onset and the symptoms that he has. In connecting with these other families whose children have Niemann-Pick Disease, I feel a deep connection with all that they are enduring. There are no words of comfort that I can offer, but I have deep empathy for this tremendous loss in their lives. It is difficult to describe, but my soul is crushed each time one of these little angels leaves us and my heart literally breaks to pieces when I think about Jacob.
Please send extra prayers and loving thoughts to the Ingram Family. If you visit their blog, feel free to leave a comment because every kind word and prayer really does matter!
|Trek has left his footprints on our hearts!|